Patient Stories
A Love Story, A Miracle, and a Long Road Home
For the past three months, Avianna has called Totally Kids home. In that time, her parents shared with us not just her journey, but the love story that brought her here. Some love stories start with fireworks. This one started in college, where two students became sweethearts […]
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Jacob Zaragoza
Our son Jacob was born with 3p Deletion Syndrome and given no more than two years to live. His infectious smile and positive attitude helped him beat those odds and enabled him to live a full and happy life until he passed away in May 2024 at the age of 12.
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Growing toward home at TK
How specialized pediatric care helped one infant grow stronger while waiting for her next heart surgery. When Avianna Grace was born with complex cardiac medical needs, her parents knew their journey would look different than they had imagined. Instead of bringing their newborn home, they entered a world of […]
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Matthew Cobley
My son Matthew was hit by a car while riding his bicycle in 2022. He was thrown headfirst into a cinder block wall; unfortunately he wasn’t wearing a helmet. Paramedics arrived on scene and Matthew was still breathing, albeit faintly. They rushed to a hospital where he underwent craniotomy surgery to remove the left side of his skull to relieve the pressure on his brain from the multiple subdural hematoma. Five days later surgeons removed the right side of Matthew’s skull because his brain was still swelling.
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